Brain Mind and Pain – Project Updates

PAE news

The Written Declaration and next actions


In recent months, the vice-chairs of the Brain, Mind and Pain European Parliament interest Group, together which some co-initiators, have been working hard on Written Declaration 0112/2016 on access to employment for those affected by neurological disorders and chronic pain conditions.

Presented on 24 October 2016, they had until January 24th to get the signatures of half +1 of their MEP colleagues (that’s 376). Our members and their members also reached out to the national MEPs which was a big help.  However, we didn’t have the wind at our backs.  At that time, the discussion in the European Parliament about written declarations in general reached its climax and they voted to stop all written declarations.

Despite the negative attitude of MEPs towards written declarations, we achieved 178 signatures on our written declaration.

We would like to thank all the MEPs who signed the written declaration and all of those who did their best to get the written declaration accepted.

For EFNA and PAE this disappointment is no reason to stop with their activities.  It will encourage them to put some extra efforts towards achieving positive results. This will start with the next BMP meeting, scheduled for March 8, where we will discuss the Social Pillar with MEPs and representatives from the Commission, as well as options for patients to influence them. PAE will have an active role in this as we are convinced that our members and their members will benefit from a well-developed Social Pillar.

The Written Declaration 0112/2016



#makeworkworkThis is the title of the Written Declaration which PAE together with EFNA within the Brain, Mind and Pain interest group have been working on for the past months. The text of the Written Declaration is to be found on the dedicated website.

If approved, The Written Declaration will be a very valuable document to use at local, national and European level, for example, in:

  •  Advocating for the implementation of employment rights for those affected by chronic pain conditions
  • Raising awareness of the stigma and discrimination faced by those affected by chronic pain at work
  • Ensuring relevant EU legislation on access to employment is applied at the national level
  • Highlighting the existence of EU funds to improve accessibility to the workplace for those who wish to regain or remain in employment

We are pleased to have 22 MEPs signed up as co-authors of this Written Declaration and a total of 141 MEPs who have already signed. However, we will need to encourage a minimum of 376 MEPs  to sign to show their support by 24 January in order to have it adopted!

A background briefing with more information on this initiative is available here.

Please download the following form and digitally sign to show your support. Returns must be made from Member’s own mailbox to